Ugh

May. 29th, 2009 09:11 am
kjpepper: (eww)
No matter how many times you do it, giving yourself an injection never gets any better. Nor does it ever lose that lovely squick factor.

At least it's only once per fortnight. I think I'd lose my shit if it were every day.
kjpepper: (get well gnome)
... okay, WTF.

I just got another automated message from the people shipping my humira. NOW they're saying my scrip won't come in until Wednesday.

I'm about halfway tempted to call up Dr. Tassoni on Monday and be all like "you know what, never mind. Lets stick with the Enticort at least until I come back; this is going to be too much of a pain in my ass. Literally and figuratively."

ARGH

Mar. 5th, 2009 05:49 pm
kjpepper: (get well gnome)
I just got an automated message that my Humira scrip won't arrive 'till Monday.

This is the point where I go "Oh for fuck's sake" and bang my head against the desk for a few minutes.
kjpepper: (Dreamy)
Productivity wise, today was kind of a wash, considering I was cold and listless all day. Also riding a bit of an appetite spike which is irritating - I literally had to eat something every two hours apparently, and even then my tummy was cranky with me. Bah.

Managed to slog through the snow earlier to go to Dr. Tassoni's so I could be given the crash course on how to use the weird injection "pens" the new meds come in. I love how in trying to make the whole woogy process of giving yourself shots easier they actually made it wicked more complicated. I left feeling somewhat nostalgic for the Lovenox shots, and if you told me a year minus a month ago that I'd be saying that someday, I would have looked at you like WTF. Honestly, people, it's not that hard to stab yourself with a skinny needle and press a plunger. And since it's a fat injection, you don't even have to worry about air bubbles all that much.

The good news is unlike the Lovenox, this is a biweekly thing. The bad news is that when my actual meds DO show up, I have to start with giving myself four shots in succession. Then in two weeks, two shots. Then for the forseeable, one every fortnight. I mean, it's not THAT bad, but there's something about having to give yourself shots for a condition you have that's fairly woogy/depressing. I mean, once the needles come out, that's when you know you're Seriously Fucking Sick™, no matter how good you feel on a day to day basis. So I'm having a low level case of B'AWWWWW about that.

Packing is sort of limping along. I'll probably do some more tonight.

Today wasn't really all bad - at least while I was eating like a horse today I was eating fairly good stuff. Leftover rice and sauce from [livejournal.com profile] captainlove, apples, cheese omelette done to perfection for dinner. I must say, rediscovering edible things that drop off plants has kinda been fun. Been craving edemame ever since I had some at Butterfly the other day, note to self, must learn to actually make that, though I doubt it's anything more complex than soybean pods, a steamer and sea salt. I'm quite pleased with the pictures I took before starting to pack up Aeris for her trip across the country. (she's gonna hang with [livejournal.com profile] kittikattie and the AGGiB until I nail down where I'll be living for the next little while this summer.) And well, I'm both amused, happy and slightly embarrassed by how getting a couple of phone calls from someone I'm kinda missing a little bit* shot me from "bleh" to "Oh hey, clouds 1-8 are zipping by a little fast there..."

I think I need another apple. Goddamn it, stomach.

* galactically speaking, of course.

Notes

Feb. 22nd, 2009 01:22 pm
kjpepper: (nine naked men)
  • I'm all right. Really. I'm not great, but I'm all right. Thanks for all the calls, IMs, hugs and love yesterday, they helped a lot. As did dessert at La Fiorentina's and Avatar the Last Airbender with Jon.

  • Today is scheduled to be nuts with teh packing and the work. May have to nip out in a bit for NOS. Or maybe just make myself some more coffee.

  • it's snowing... huh. It like just started 20 minutes ago and the ground's already coated. Hm.

  • Tea tree oil soap may just be the best shampoo ever invented for dreads, if you don't mind the smell. Actually even with the smell - you just have to be sure to stick your head under the water for like ten minutes to make sure it rinses out thoroughly.

  • Music Music Music!!! Northern Kings are amazing and I just found out why. Has much to do with one of the singers from Nightwish fronting it. Awww yeahhhhh. Also, Apocalyptica. I've decided between them and Rasputina, cello just needs to be part of the standard rock band ensemble. Really I'm just a big fan of wall of sound, full orchestrated rock. I apparently actually need to see True Blood... I was already intrigued by the ads last fall and the prospect of Anna Paquin, who I've had something of an admiration for since The Piano, but Jon played Jace Everett's "Bad Things" for me last night and, well, it will be the first thing on my netflix queue when move time happens.

  • Meat: no word yet on when the needles arrive. I think I need to call people tomorrow and figure out what's up. Meantime apparently the steroids seem to be treating me all right - no more ankle swelling/pinched nerves. Course I'm a little annoyed by the side effects, which are somehow more noticeable than when I was on the prednisone. I've been more of an emotional wreck lately (that could just be stress), I'm craving sugar and simple (c word that I refuse to use)s like HELL, and my reproductive system has decided that whatever schedule it's quietly been running on for the past near 20 years is obsolete now and it's more fun to start each week with a two day period. Um. What. No. No real sign that the intestines are about to go splode, but then again I felt pretty fine before the video camera revealed the jejunum full of potential Old Faithfuls, so me feeling okay may not be the best thing to go by. :P Decided I'm not going to worry too much about my weight - I'm too busy really to give it much thought, and besides, in a couple of weeks I'm going to be back in New York, Land of Walk Everywhere, and I rather fully expect whatever excess I'm carrying to pretty much fall off. It always does when I'm there for any significant period of time.

  • I just realized my move date is the day Watchmen comes out... this is making me rather sad, considering who I assumed I'd be seeing it with when the first teasers dropped. Mew.
    Lunch, then back to the grind... :P

    ETA: aaaaaaaaaand back on the dragon wagon...
    Adopt one today!Adopt one today!Adopt one today!

Ow.

Feb. 13th, 2009 01:32 am
kjpepper: (FAIL)
Dear 3M,

If you can make an adhesive that allows you to slap a hook on the wall, hold it there tightly enough to support a wool peacoat with twenty pounds of rocks in the pockets, and then remove it with nary a mark on the paint where it was, you should find the challenge of making a medical adhesive strong enough to do its job and yet not tear off three layers of skin when removed to be no problem.

Get cracking.

Love,

Andee


Seriously, I made the mistake of forgetting my elbow was gauzed and taped for most of today (the contrast media was put in through an IV), and pulling off the adhesive was not only torturously painful, but I have an angry red strip of skin on the inside of my elbow that looks like a first degree burn. It joins the rapidly growing collection of tape scars I have all over my front from the hospital and from the VCE last month. Both my boobs and several spots on my belly look like I picked up ringworm.

Just more battlescars, I suppose... still... annoyed...
kjpepper: (Default)
cut because we care (and know you might not) )

Rock over London, rock over Chicago. LoudTwitter: Shipping tweets to your blog daily.

Done

Feb. 12th, 2009 10:10 am
kjpepper: (om nom nom)
Cat scan done. Got a voucher for free breakfast after. Yay.

And now a long leisurely day of forcibly expelling barium and constrast media out of my system. WATER WILL BE DRUNK. Rar.

Uggghhgk

Feb. 12th, 2009 08:48 am
kjpepper: (eww)
Lemon flavored barium shake for the lose. Gag.
kjpepper: (what is love (random))
So a general update:

Been on the new steroid for about a week now. I've noticed a few things have improved since:
  • my weight is going down again. Course this could just be because I've been kinda off my feed this week.
  • bathroom trips are no longer an adventure. And by adventure I mean... okay, that's veering into TMI territory.
  • my right ankle/foot hasn't been swollen in a few days now, and it no longer hurts like someone picked up a nerve in the top of my foot and is twisting it.
  • the lingering abdominal soreness is gone too.
So far so good. I'm cautiously optimistic. No word yet on when I start Humira, but I'm guessing Dr. Tassoni'll discuss that with me on Friday.

Work is still kinda insane, and probably will continue to be for a bit. I am actually kinda glad about this, as busy == $$$ and after last week's expense laden horrificness I could seriously use $$$.

Dear Muse,

9am when I have six things to finish on my desk is NOT the time to whack me with the insipiration bat.

Andee

That said, literally, when I sat down this morning, an entire world dropped into my head. No, really. It's messed up. It's like all the little nebulous side stories and fiction ideas that I've been dicking around with for the past six or so years suddenly have a unifying theme and a home. And weirdly enough... this may be the key to finding my way back here at the end of the year. Man, but I wish I could draw better than I do. Or at least faster.

And now, chicken pasta parmesan, part deux. YAY.
kjpepper: (Default)
cut because we care (and know you might not) )

Rock over London, rock over Chicago. LoudTwitter: Shipping tweets to your blog daily.
kjpepper: (Default)
cut because we care (and know you might not) )

Rock over London, rock over Chicago. LoudTwitter: Shipping tweets to your blog daily.

Urgk.

Feb. 4th, 2009 10:37 am
kjpepper: (get well gnome)
Ass-early this morning: Check voice mail. I have an extremely silly NOS fuelled message from the Blue (saved) and a cheery notice saying I have an appointment with my regular Doctor at 4 today. Well shit, forgot about that, and now it's too late to cancel it without getting fined. Hell. Resolve to try anyway once office is open.

8:45am: call from Dr. Tassoni's. Oh boy. "Have your primary care run x y and z test next time you see her. Oh and we're gonna call you back in a minute to schedule a cat scan. And Dr. Tassoni wants to see you a bit sooner than March 4th, can you come in Friday the 13th?" Sure fine, whatever... okay, looks like I won't be canceling that appointment with Dr. Kate then.

8:50am: "o hai kan u do lolcat skan on Thursday the 12 at like 8 am?"


So apparently, on top of hectic workday and lunch at Osaka with [livejournal.com profile] sithlord1922, I now have to be in Amherst at 4pm for more poking and prodding. *sigh* granted I was pointed in that general direction today anyway so it ultimately works out, but arg. I am so damn sick of this shit...

My Valentinr - kjpepperAdopt one today!Adopt one today!Adopt one today!Adopt one today!Adopt one today!Adopt one today!
Get your own valentinr
kjpepper: (Default)
cut because we care (and know you might not) )

Rock over London, rock over Chicago. LoudTwitter: Shipping tweets to your blog daily.
kjpepper: (eww)
Hoookay. So lets say here is a normal intestine, just chilling. "Dang, that's some sweet intestine," you might say. "PINK."



Now here's what mine looks like.



The evil faces are for effect. And it's a lot slimier and gross looking than what I can recreate with vectors and gaussian blur. Basically Dr. Cave pulled the pictures out and I literally made the face in the icon. And I can really see Dr. Tassoni screaming HOLY SHIT and calling both this guy and Holly like immediately and why he sounded so damn panicky when he called me. What. The Hell. Pretty much the black bits are necrotized ulcerated tissue, ie, places where my immune system snacked on me to the point of scarring. Gyeeeaaaagggggh.

So we've pretty much established that this is either the extra super special edition of Crohns, or it isn't Crohns at all and it's something that's probably going to show up on Mystery Diagnosis or House. (At least we know it's not lupus. It's never lupus.) Really at this point, I have a diagnosis of nonspecific intestinal WTF (or as Dr. Cave said "let's keep an open mind about what to call this") and meanwhile I've still got an immune system snacking on my vital bits. So as of tomorrow I'm back on steroids, but a new, nonsystemic one (Budesonide), and later on they're going to start me on a biologic anti-inflammatory drug (Humira - gack, this involves needles).

Meantime we still have Holly on red alert in case one of the evil black spots decides to blow again *wince* I have the nasty suspicion that I'm gonna lose a few more inches of gut before all this is over. :P

Christ on a crutch, thank the powers that be that I have decent health insurance right now.
kjpepper: (Default)

Very quick before I lose wifi signal. Apparently the consensus on my intestines is something along the lines of OMFGWTF!!!! Emphasis on the WTF bit.

More later, with photoshop and puppets. Maybe.

Ugh

Jan. 30th, 2009 09:55 am
kjpepper: (nyeh! demongo)
So last night's highlight was dealing with eight malfunctioning smoke/carbon monoxide alarms throughout the house for an hour. My ears still feel like I survived a metal concert.

Stressing - managed to change that appointment with Grand High Poobah of Lower Intestine, but I still need to get to Worcester by 9am on Tuesday. I really am not sure how that's going to work. I might have to head out there Monday night and stay over, then take the bus back on Tuesday. *sigh* it just had to be Monday night, didn't it. Oh well. It will be figured out. Stressing about this is NOT helped when your insurance's referral department calls and tells you that your doctor's practice doesn't exist. (They had the wrong phone number.)

It always has to be when I have to do sixteen million other things that a craft project/idea bubbles to the surface in my head. Good god, wait until March, muse.

Just found out someone I know is in the ER. *worries and sends wellness thoughts eastward*

That's pretty much all...

My Valentinr - kjpepper Adopt one today! Adopt one today! Adopt one today! Adopt one today! Adopt one today!
Get your own valentinr
kjpepper: (Tenna (anxious))
If you say I have an appointment at UMass tomorrow morning, it might help if you specified UMass Memorial Medical Center in frakking WORCESTER. I can't do that on THAT short a notice.

Goddamn not driving yet fuck fuck fuckery *grumble*

Aaaaah

Jan. 28th, 2009 10:22 am
kjpepper: (masstransiscope)
Okay, so my appointment with the new specialist is tomorrow (aaaaaaaaaagh) but I don't know when, and I also have to find time to head up to Dr. Tassoni's and pick up the mountain of paperwork and pathology shit to take with me.

between that and the driving lesson, I'm not going to have much of a workday left.

*searches craigslist for a new or at least fully operational intestine*
kjpepper: (Default)
Andee...

  • 10:02 is psyched about snowstorm tomorrow. Two week old snow on the ground = stale.
  • 11:35 is really done with getting bad news from doctors, and freaking out about the latest.
  • 16:09 thinks it's definitely not a fun thing to realize how deep your own insecurity runs.
Automatically shipped by LoudTwitter

July 2009

S M T W T F S
    1234
567891011
12131415161718
19202122232425
262728293031 

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jul. 26th, 2017 02:34 pm
Powered by Dreamwidth Studios