kjpepper: (eww)
[personal profile] kjpepper
Hoookay. So lets say here is a normal intestine, just chilling. "Dang, that's some sweet intestine," you might say. "PINK."



Now here's what mine looks like.



The evil faces are for effect. And it's a lot slimier and gross looking than what I can recreate with vectors and gaussian blur. Basically Dr. Cave pulled the pictures out and I literally made the face in the icon. And I can really see Dr. Tassoni screaming HOLY SHIT and calling both this guy and Holly like immediately and why he sounded so damn panicky when he called me. What. The Hell. Pretty much the black bits are necrotized ulcerated tissue, ie, places where my immune system snacked on me to the point of scarring. Gyeeeaaaagggggh.

So we've pretty much established that this is either the extra super special edition of Crohns, or it isn't Crohns at all and it's something that's probably going to show up on Mystery Diagnosis or House. (At least we know it's not lupus. It's never lupus.) Really at this point, I have a diagnosis of nonspecific intestinal WTF (or as Dr. Cave said "let's keep an open mind about what to call this") and meanwhile I've still got an immune system snacking on my vital bits. So as of tomorrow I'm back on steroids, but a new, nonsystemic one (Budesonide), and later on they're going to start me on a biologic anti-inflammatory drug (Humira - gack, this involves needles).

Meantime we still have Holly on red alert in case one of the evil black spots decides to blow again *wince* I have the nasty suspicion that I'm gonna lose a few more inches of gut before all this is over. :P

Christ on a crutch, thank the powers that be that I have decent health insurance right now.

Date: 2009-02-03 07:53 pm (UTC)
From: [identity profile] austingoddess.livejournal.com
Well fuckity. I hope that this new treatment does something good for you, and right quick.

Date: 2009-02-03 09:06 pm (UTC)
From: [identity profile] innostrantsa.livejournal.com
O_O!!

"Necrotized" is never a good word. OMG. Health insurance, FUCK YEAH.

Date: 2009-02-03 09:21 pm (UTC)
From: [identity profile] harinezumi.livejournal.com
Well shit(-producing equipment FAIL). Are they referring you case anywhere for help with the diagnosis? Hope the drugs help!

Date: 2009-02-04 03:37 am (UTC)
From: [identity profile] aersi.livejournal.com
.............You certainly win for crap internal issues.

However, I think that's how they should show you stuff at the doctor's office. "Well Ma'am, these are normal cells going about their business, but these are your EVIL cells. See how they're devouring their neighbors for fuel?"
I'd appreciate/understand the descriptions more.

Date: 2009-02-04 04:47 pm (UTC)
From: [identity profile] harinezumi.livejournal.com
For some reason I'm getting Moyashimon flashbacks.

Date: 2009-02-05 05:05 am (UTC)
From: [identity profile] grinninfoole.livejournal.com
Wow. That's really terrible. I hope that your doctors can find effective therapies, and that you can make the necessary life changes to get healthy.

Date: 2009-02-05 06:00 am (UTC)
From: [identity profile] padparadscha.livejournal.com
I'd suggest "HOSHIT KILL 'EM WITH FIRE," but that might compound problems. So, uh, I hope SCIENCE can head this off!

Date: 2009-02-07 01:48 am (UTC)
From: [identity profile] nireena.livejournal.com
wow, hon. glad you have good health insurance. *hugs*

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